TBI Resources

TBI Resources

Including International, National and New York State Based Organizations

Many people who are concerned about an actual or potential brain injury do not know how to locate the organizations and find resources that can provide information and actual help. This section identifies and provides links to 50 resources that will help identify important issues, answer many questions and, overall, make you a better advocate for those who need help.

1. Alzheimer’s Association Tel: (800) 272-3900

2. American Academy of Neurology Tel: (800) 879-1960

3. American Academy of Physical Medicine and Rehabilitation Tel: (847) 737-6000

4. American Association of Neurological Surgeons (AANS) Tel: (888) 566-2267

5. American Brain Coalition Tel: (763) 557-2913

6. American Chronic Pain Association Tel: (800) 533-3231

7. American College of Emergency Physicians (ACEP) Tel: (800) 798-1822

8. American Congress of Rehabilitation Medicine (ACRM) Tel: (703) 435-5335

9. American Headache Society (AHS) Tel: (856) 423-0043

10. American Neuropsychiatric Association (ANPA) Tel: (313) 874-6779

11. American Occupational Therapy Association, Inc. Tel: (301) 652-6611

12. Association of Academic Physiatrists Tel: (410) 654-1000

13. Betty Clooney Center Tel: (562) 938-9005

14. Brain Injury Association of America (BIAUSA) Tel: (800) 444-6443

15. Brain Injury Association of New York (BIANYS) Tel: (518) 459-7911

16. Brain Injury Hub (UK) Tel: (011) 01737 365 000

17. Brainline Tel: (703) 998-2020

18. Brain Trauma Foundation Tel: (212) 772-0608

19. Center of Excellence in Medical Multimedia Virtual Library Tel: (719) 333-7565

20. Centers for Disease Control and Prevention (CDC) Tel: (800) 232-4636

21. Congressional Brain Injury Task Force Tel: (202) 225-5751

22. The Dana Foundation Tel: (212) 223-4040 (Based in New York State)

23. Defense Centers of Excellence for Psychological health and Traumatic Brain Injury Tel: (301) 295-3257

24. Defense And Veterans Brain Injury Center Tel: (800) 870-9244

25. Epilepsy Foundation of America Tel: (800) 332-1000

26. Family Caregiver Alliance Tel: (800) 445-8106

27. HRSA Traumatic Brain Injury Program (US Dept HHS) Tel: (301) 443-9280

28. Institute of Medicine (IOM) Tel: (202) 334-2352

29. International Brain Injury Association Tel: (703) 960-0027

30. International Brain Research Foundation (IBRF) Tel: (732) 494-7600

31. The Mount Sinai Hospital Tel: (212) 241-6500 (Based in New York State)

32. National Association of State Head Injury Administrators (NASHIA) Tel: (802) 498-3349

33. National Disability Rights Network Tel: (202) 408-9514

34. National Headache Foundation (NHF) Tel: (888) 643-5552

35. National Institute on Disability, independent Living, and Rehabilitation Research Tel: (202) 245-7460

36. National Institute of Health (NIH) Tel: (800) 352-9424

37. National Institute of Neurological Disorders and Stroke Tel: (301) 496-3167

38. National Intrepid Center of Excellence Tel: (301) 319-3600

39. National Library of Medicine (MedlinePlus) Tel: (888) 346-3656

40. National Rehabilitation Information Center (NARIC) Tel: (301) 459-5900

41. New York State Dept of Health Concussion Prevention Tel: (518) 473-1143

42. New York State Dept of Health TBI Programs Tel: (866) 881-2809

43. New York University (NYU) Medical Center: Rusk Institute Tel: (212) 263-6034

44. University of Rochester Medical Center Tel: (585) 275-4568 (Based in New York State)

45. Sara Jane Brain Foundation Tel: (212) 576-1180 (Based in New York State)

46. Transitional Learning Center Tel: (409) 797-1455

47. Traumatic Brain Injury National Data and Statistical Center Tel: (303) 789-8202

48. Uniformed Services University of the Health Sciences Tel: (888) 826-3126

49. Upstate Medical University (SUNY) Tel: (315) 464-8986 (Based in New York State)

50. Weill Cornell Medical College: Brain & Mind Research Institute Tel: (212) 746-545 (Based in New York State)